Tuesday, July 28, 2015

CT Scan Update

Dear Friends and Family,

We have been so blessed by all of your prayers, texts, e-mails.  Thank you for your love and concern for our family and our boy.

Asher was a great little patient through his CT scan.  He didn't even need an IV line, so he was happy to avoid another poke. 

The initial feedback that we received from the radiologist was that the images of the lungs had not changed much since his previous scan last October.  We still wait official word from his pulmonologist, once she has been able to compare them closely, which may demonstrate some growth (since he has grown, and his oxygen needs haven't changed).  We will also wait to hear from the cardiologist and hopefully an anesthesiologist to further discuss the risks of sedation should we decide to attempt a heart catheterization.  
The long and the short of it:  at first glance it doesn't look like the best we had hoped for - substantially improved lung tissue, we may not be any closer to knowing Asher's tolerance for invasive surgery, but we wait with hope for more detailed results from pulmonology.

We will update further if there are any changes or big decisions to make.

He did so well during the scan, though, and I even got to ride with him through the machine, holding his little arms above his head as we sang, "Had a Little Rooster."  
After our long day of appointments, play dates for Noah and Ethan, and dinner with friends, I found the Bible verse for today on my kitchen counter:

"The steadfast love of the Lord never ceases,
his mercies never come to an end;
they are new every morning;
great is your faithfulness."
Lamentations 3:22-23

This verse comforted our family last Fall as we first faced all the unknowns, and it comforts us still.

With much love,
Laura and Michael

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